The Neurological Alliance has launched its inaugural neurological patient experience survey –

The survey is the first of its kind for the neurological community. It aims to collect vital information about the experiences of care received by people affected by neurological conditions and help us to understand how much progress has been made in improving neurological services.

The survey is open until Monday 15 September 2014 and the Alliance welcomes responses from anyone with a neurological condition living in England.

They will be using the survey findings to feed into a report later this year. The report will set out a comprehensive picture of what is happening in relation to neurological services and make recommendations about how care can be improved.

This is without doubt a timely and exciting opportunity for the neurological community.

The Neurological Alliance needs your feedback to be able to make the strongest case to decision makers about how services need to change. [Insert organisation]fully supports the Neurological Alliance in its ambitions, and we welcome the survey as an important tool in measuring improvements to neurological services in the future. We really value your support and look forward to sharing the findings with you over the coming months. 

Please click here: to complete the survey.

from Healthwatch Brighton and Hove – Your spotlight on local services


Following earlier denials, Liberia has admitted that 17 suspected Ebola patients are “missing” after a health centre in the capital was looted.

from BBC News – Health

Many of us don’t know where to go if we have a concern or complaint about health or social care. With so many organisations involved it’s difficult to know where to start, let alone having the strength and persistence to navigate the system on your own.
signpost-200x338 via healthwatch BH

Finding it hard to navigate the health and social care system

That’s why Healthwatch has worked with Citizens Advice to produce a series of guides  to help you make a complaint or raise a concern about health or social care.

You can find out more about what’s involved in making a complaint about a particular service and see what your next steps might be. There are tips and tools such as letter templates and other practical resources to support you to make an effective complaint. For further info see:

You can also contact us directly through our Helpline:

Helpline telephone: 01273 234040 (10am-12pm, Monday to Friday)
Helpline email:

We want to make the system better at listening to what you have to say. But in the meantime, we hope these tools will help get your message heard.

from Healthwatch Brighton and Hove – Your spotlight on local services 


Brighton and Hove Clinical Commissioning Group would like to invite you to one of two (identical) public discussion meetings, see below.  This will be a chance for you to meet the CCG leaders and ask any questions you may have about our work. We will also be giving a brief update on some of the challenges we are currently facing in delivering primary care in the city.
The meetings are as follows:
18th  September : 2-3.30 pm  Brighthelm Centre, North Road, Brighton BN1 1YD  (auditorium)
2nd October 6-7.30 pm : Friends Meeting House, Ship Street BN1 1AF (main meeting room)
Please note that light refreshments- tea, coffee and biscuits- will be provided at both meetings. 
To help inform you about our work, please see our 2 Year Operating Plan :
If you have any questions about the above meetings, or about our work, please contact Jane Lodge, Patient and Public Engagement Manager 01273 574649/

from Healthwatch Brighton and Hove – Your spotlight on local services


Care Quality Commission Logo

Care Quality Commission Logo

GP practices that provide inadequate care will be given deadlines for improvement or face closure, under a new system of ‘special measures’ proposed today (Thursday 14 August) by Professor Steve Field, Chief Inspector of General Practice. This brings them into line with other sectors regulated by the Care Quality Commission (CQC).

CQC will begin to introduce special measures from October this year. This will coincide with CQC starting to rate 8,000 NHS GP practices on the basis of whether they are outstanding; good; requires improvement or inadequate. Initially we will pilot the special measures regime to test our approach, working closely with NHS England. We will also work closely with the GMC, the Royal College of GPs and others to develop special measures.

Under CQC’s proposals, special measures will allow the regulator, CQC, in partnership with NHS England, to set out clear expectations for improvement, including a timescale to sort out problems.

The proposals suggest that where aspects of a service are rated ‘inadequate’, practices will have six months to improve. If they fail to improve they will be put into special measures and if after a maximum of a further six months they are still found to be inadequate, they will have their registration with CQC cancelled and/or their contract terminated by NHS England.

In some cases, a GP practice will have such significant problems that patients are at risk, or there will be sufficiently little confidence in the practice’s capacity to improve on its own, that the practice will be placed straight into special measures.

Where, at the end of special measures, if the provider fails to improve and their registration is cancelled or where a contract is terminated by NHS England there would be joint planning between CQC and NHS England to ensure that patients registered at the practice continue to receive GP services. NHS England’s role would be to ensure that it commissions enough GP services for its population. CQC’s role is to register the new provider if there is one, or to amend registration if another provider takes on the practice.

CQC has been piloting a new way of inspecting GP practices, with specialist inspection teams which include a GP specialist advisor. These inspections have confirmed that most practices are providing high quality care, but a small number are very poor. In some cases these practices have been providing poor care for a long time. Poor care has been able to continue for too long with some providers because the consequences of not improving have been insufficient. Everyone should be able to receive good quality care from their GP practice, whoever they are and wherever they live in England.

NHS England and the Royal College of General Practitioners are developing arrangements to provide support to GP practices that are placed in special measures.

Professor Field said; ‘Most GP practices provide good care. We have confirmed this in our pilot inspections so far. But we can’t allow those that provide poor care to continue to let their patients have an inadequate service. I want to do all I can to drive up standards in those that are not providing the services people deserve. We need to have a clear framework and a process to respond to those GP practices that are providing inadequate care to ensure that they can’t continue to provide inadequate care indefinitely.

‘Special measures will firstly promote improvement, but where practices do not improve, working with NHS England we will call time on poor care. Special measures will be viewed as the final chance for a practice to improve.

‘I would like to remind people that our inspection programme is not just looking at inadequate care, we are also looking for examples of good and outstanding care to share and celebrate across the system.
‘When health and care organisations fail the people to whom they provide care, it’s important that failure is identified quickly and the action is to ensure services for people improve. That sits at the heart of special measures.’

Mike Bewick, Deputy Medical Director for NHS England, said: ‘NHS England’s vision is to see general practice play an even stronger role in the heart of local communities, offering more joined up, high quality services. As part of this, we want to help GPs to provide ever higher standards of care to patients.’

Niall Dickson, chief executive of the General Medical Council, said: ‘Whenever CQC’s new inspection system raises concerns about the competency of individual GPs, the matter will be referred to the GP’s local Responsible Officer and if necessary to the GMC. Family doctors are now subject to regular checks, but the inspections in England are bound to expose areas of weakness as well as good practice. We will work closely with CQC and local Responsible Officers to help drive up standards.’

from Healthwatch Brighton and Hove – Your spotlight on local services

Healthwatch Sx Stroke Collaborative Stroke ReviewThe NHS across Sussex is currently looking at stroke services throughout the region and would value your feedback on how services are currently caring for people locally.

The NHS across Sussex would appreciate it if you could spare a few minutes to complete this short questionnaire and share your experience of local services to help shape its work.  If you have experienced more than one stroke or TIA (Transient Ischaemic Attack or mini stroke) please refer to your most recent experience. 

To take a part in this review please click here. 

If you would prefer to speak about your experiences, please call Caroline Huff on 01273 403693 

from Healthwatch Brighton and Hove – Your spotlight on local services

CQC LogoHealthwatch Brighton and Hove welcomes the recent CQC Inspection Report of Brighton and Sussex University Hospitals NHS Trust (BSUH).  Although the Inspection Report makes it clear improvements are needed, we were pleased that it echoes much of what we have already heard from patients and other data. We know from patients, who have contacted our Helpline (Mon to Fri 10am-12pm) that there are issues with Accident and Emergency and waiting times for services such as orthopaedics.We are working on a project looking at improving hospital discharge (having recently visited the discharge lounge) and we will also be part of a new group looking at the emergency department redesign.  We have regular meetings with the Chief Executive of the Trust to ensure he is aware of issues we have identified from patient concerns.  We welcome the openness of the Trust in working with us but we recognise much work needs to be done in certain areas.

“Although there are clear areas of improvement needed we were pleased to see areas of outstanding service. We are happy to support the Trust in its work to improve services especially to reduce inappropriate admissions to Accident and Emergency. We hope the Trust will take immediate action to improve services and its rating to Good and Outstanding as we want patients to receive the service they deserve.” Claire Jones, Healthwatch Brighton and Hove Manager

We encourage patients to contact our Helpline 01273 23 40 40 (Mon-Fri 10am-12pm) to tell us about their experiences in local health and social care.

-Press release ENDS – Notes to Editors:


Media Contact: Magda Pasiut:

About Healthwatch Brighton & Hove

  • Healthwatch Brighton and Hove has legal rights to enter and view publicly funded health and adult social care settings and to be responded to within 20 days by the provider of health and adult social care services.
  • Healthwatch Brighton and Hove is one of 152 Local Healthwatch organisations that feed into the national body Healthwatch England, set up in October 2012.
  • Healthwatch Brighton and Hove has transitioned from Brighton and Hove Local Involvement Network (LINk).
  • Healthwatch Brighton and Hove is funded by the Department of Health and commissioned through Brighton and Hove City Council (BHCC), but is independent of the NHS and BHCC.
  • Healthwatch Brighton and Hove is about to become a Community Interest Company – its work centres around being beneficial to the communities of Brighton and Hove. It works with those who plan and run health and social care services asking questions about the way services are provided and suggesting improvements.

For further information about Healthwatch Brighton and Hove, please contact Magda Pasiut, Information and Communications Co-ordinator on or visit

from Healthwatch Brighton and Hove – Your spotlight on local services

Date: 10 Sep 2014 – 10:00 to 12:00
Location: Conference Room, Community Base (South Wing), Queen’s Road, BN1 3XG
Members of the public and press are welcome to attend.  The Agenda and papers for this public meeting can be viewed via our website (under the Get Involved tab) from the Wednesday prior to the meeting.

Questions for the Governors should be received by the Engagement and Communications Coordinator no later than 24 hours prior to the meeting by:
E-mail to
or by post to: FREEPOSTRTGY-CZLY-ATCR   Healthwatch Brighton and Hove Brighton BN1 3XG
Alternatively, you can ring the office on 01273 234041.

After the meeting refreshments will be provided and there will be an opportunity to have an informal chat with Governing Body Members.

Please also let us know before the meeting about any individual needs, such as blue badge parking, communication support etc.

from Healthwatch Brighton and Hove – Your spotlight on local services

Tarik Jasarevic from the World Health Organisation told the BBC that an experimental drug has been used.

from BBC News – Health

Local Quality Accounts HW BHBody:

A Quality Account is a report about the quality of services by an NHS healthcare provider. The reports are published annually by each provider, including the independent sector, and are available to the public. Quality Accounts are an important way for local NHS services to report on quality and show improvements in the services they deliver to local communities and stakeholders.

The quality of the services is measured by looking at patient safety, the effectiveness of treatments that patients receive and patient feedback about the care provided. Each Trust has duty to share its draft Quality Account with Healthwatch to provide comments.

You can read Local Accounts for local Trusts below which include comments from Healthwatch Brighton and Hove.

Brighton and Sussex University Hospitals (BSUH)

South East Coast Ambulance Service NHS Foundation Trust (SECAmb)

Sussex Partnership NHS Foundation Trust (SPFT) 

Sussex Community NHS Trust (SCT)

Martlets Hospice

Adult Social Care 


from Healthwatch Brighton and Hove – Your spotlight on local services

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